now having had another emergency it was to remove the controller battery pack but hopefully to enable the staph infection to finally clear up as it isnt and it seems to be following the track of the implant.im in a lot more pain latley and morphine isnt helping too much im not going to talk to the gp cause i dont want it upped again my theroy is more im on he more ill have to go through to get off the stuff.
another thing im keeping my mouth shut about is that i have quite a lot of pain in my lower bck and lost more feeling in my right leg its wiered cause i can feel how much they both hurt but cant feel my jeans touching me or that i have socks and shoes on.
i have also found that i have gone from only sleeping a cpl hours to now over sleeping i do no not have to do much at all to become extremly tired he appitite is still pretty non exsistant last time i wieghed me i had lost around a stone i know im still losing as most of my jeans i have to put a belt on as they all fall off me.
i need to take control back as i had given a lot of it to drs wich is ok but they do not have to cope with what complications i bring home
so heres to keep my mouth shut and adapting and finding a life in it all not just living so to all the nicer things in life im on the way bck id rather be happy doing things that make me me that sat in 4 walls with regrets
hi this hopefully is the start of helping others and somewhere for people to go that have come across, live with , care for someone or just want to learn about crps/rsd this is just my own experiance living with crps a small voice in a sea of many 1000s that have this and still a lot of those voices are unheard and are suffering every day
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